Links - Premature Baby Resource Websites
websites that lead you to the world of preemie parenting. I started this
list of sites in 1996 and its still a great resource. Enjoy..
of Premature Babies
This comprehensive website from the list owners and founders
of Preemie-L mailing list, Anne Casey and Gary Hardy provides:
- Archives and introductions of past Preemie-L email list messages
- FAQS related to prematurity
- Discussion forum and mailing list
- An in-depth quarterly newsletter
- Published papers Preemie-L conferences (1998, 1999, 2001)
- Pointers to other preemie resources.
Allison & Rick Martin's Prematurity website provides a wealth
of support and information on the long term effects of prematurity for
parents of children born premature. The only support site and list exclusively
focused on school age children, Premature Child includes a large collection
of articles by professionals and parents, resources and support forums
on the special needs of prematurity.
Premature Baby Premature Child
Companion website on preemie babies and older preemies. Covers preemie
parenting, preemie care and preemie stories. A great set of stories, articles,
resources and indepth research to keep you occupied for hours in reading
The Preemie-l newsletter The Early Edition, edited by Tammy Bangs,
was a collaborative publication which brought together a collection of
wisdom and discussions from preemie parents and professionals. The Early
Edition is an informative and moving consolidation of the experiences
of parents of preemies packaged for distribution to your NICU, support
groups, friends and family.
A great resource for parents of preemies who might have special needs.
This comprehensive website on children's special needs, covers many of
the long term impacts related to prematurity. Sensory integration, cerebral
palsy, vision impairment, speech and language, attention deficit (ADHD,
autism and more.
Dianne Maroney, a NICU nurse and the co-author of "Your Premature
Baby and Child", provides an array of helpful articles and advice
for parents and nurses on parenting a premature child. If you have a premature
baby or preschooler, take a moment to visit this website - you will be
glad that you did.
Amy Tracy, the co-author of "Your Premature Baby and Child,"
provides a reading room on PreemieParents for parents of children
born premature. Her informative articles include topics such as parenting
your preemie, your preemie's clues, mild developmental delays and retinopathy
of prematurity (ROP).
Pediatrics Developmental Continuity Program
A professional collection of articles for physicians, parents, and therapists
involved with the care and development of children born prematurely is
provided at this site by Dr. Sheena Carter and other members of the Emory
Developmental Continuity Program, of Emory University. A great resource
for those interested in long term issues of prematurity - from babies
to older children.
CyberNursery Preemie Web
The King's CyberNursery is one of the longest standing
preemie sites on the Web and features an extensive listing of preemie,
baby and parenting links. It documents the life of their preemie boy from
infancy to teen. You can also read comments from visitors and Tommy's
updates on facebook.
Krisanne provides inspiration for parents who wish to provide Kangaroo
Care of their premature babies in the NICU. This site's explanation,
photographs, and parent quotes on this special handling technique provide
encouragement to parents around the world.
Terry Tremethick's active website Preemie Info is an moderated
interactive display where parent view and submit stories, poems, photos
and links to share with one another.
Rosanne Smith's Preemie Ring is a collection of
premature infant web sites. Go around the ring and visit sites of preemie
parents all over the world.
Rebecca Pittelko' Imagines page a collection of personal
anecdotes been posted on the preemie-L mailing list. This is a stirring
set of quotes documenting the emotional response to parenting and giving
birth to a baby born premature.
Neonatologist Dr. Doug Derleth's Premature Baby Information
page provides expert information on issues important issues for parents
of premature infants. His articles include such as Minimizing Pain in
the NICU, Retinopathy of Prematurity, RSV FAQ, and Extreme Prematurity.
Melissa Armstrong's Preemie-l Photo Gallery provides a wonderful
collection of photographs of children of preemie-l members arranged by
gestational age. A great visual testimonial for children born premature.
Photo's and links to personal websites are provided. The "Guardian
Angels" page pays homage to the premature babies who did not survive.
Ingrid Olsson Renfor's Inkan's Home Page provides information
and resources about PROM (Premature Rupture of Membranes), an illustrated
list of preemie stories by gestational age, and support services for Swedish
parents of preemies.
Des Parents D'Enfants Prematures du Quebec (APEP)
An organization in Quebec, Canada, which provides support and information
for families of infants born before 37 weeks gestation, and health professionals.
Support list, brochures and website are provided in French.
T Hynan's Home Page
Michael Hynan conducts research on stress reactions in parents that
have had their premature (or full-term high-risk) infant hospitalized
in the NICU. His website provides text of talks on coping with high risk
birth and the NICU.
Coalition for Prematurity Awareness
Mary Searcy and Sandra Peters created this site for
the Coalition for Prematurity Awareness to organize the promotion
of awareness of the incidence of premature births in the United States,
the preventable causes, and possible consequences. A part of the Elaine
Elaine Sayers' Alexis Foundation provides articles from the prematurity
conference 1999 and other resources.
Sam: VIP (Very Important Preemie)
Susan Warren's web page Miracle Sam: Very Important Preemie contains
the touching story of her son Sam, who was born with a number of premature
complications and immunodefciency. Her website includes guidance on "Learning
to Touch a Preemie," lactation, caring for a central line, and instructions
to make a custom cover for an isolette.
Survival Tips for New Preemie Parents
Kerry Bone's website T-Bone's Survival Tips for New Preemie Parents
provides suggestions to help parents, family and friends cope with the
emotional side of the birth of a premature baby. Articles cover subjects
such as asking questions, taking care of yourself, emotions, breast feeding,
how your family and friends cope, holidays, disabilities and many more.
HELLP Syndrome Page
Ami Logan's HELLP Syndrome homepage provides inforamtion and resources
on HELLP (Hemolysis, Elevated liver, Low platelet), pre-eclampsia, and
pregnancy induced hypertension. In addition, the HELLP website provides
HELLP syndrome birth stories, a
message board and the HELLP Syndrome WebRing.
In the Preemie Mom's Page Sandra Peters shares the life
changing experience of the premature births of her two children. Her
well written articles on parenting a child with cerebral palsy are compelling
and informative. Articles from her newsletter, Preemie
Parent Connection, cover topics such as assisting preemie dads and
granddads, surviving a medical crises, and supporting the siblings of
a special needs child, from a number of distinguished contributers.
Copyright Allison Martin