Preemie
Links - Premature Baby Resource Websites
By Allison
Martin
Resource
websites that lead you to the world of preemie parenting. I started this
list of sites in 1996 and its still a great resource. Enjoy..
Parents
of Premature Babies
This comprehensive website from the list owners and founders
of Preemie-L mailing list, Anne Casey and Gary Hardy provides:
- Archives and introductions of past Preemie-L email list messages
- FAQS related to prematurity
- Discussion forum and mailing list
- An in-depth quarterly newsletter
- Published papers Preemie-L conferences (1998, 1999, 2001)
- Pointers to other preemie resources.
Prematurity
Allison & Rick Martin's Prematurity website provides a wealth
of support and information on the long term effects of prematurity for
parents of children born premature. The only support site and list exclusively
focused on school age children, Premature Child includes a large collection
of articles by professionals and parents, resources and support forums
on the special needs of prematurity.
Comeunity:
Premature Baby Premature Child
Companion website on preemie babies and older preemies. Covers preemie
parenting, preemie care and preemie stories. A great set of stories, articles,
resources and indepth research to keep you occupied for hours in reading
about preemies.
The
Early Edition
The Preemie-l newsletter The Early Edition, edited by Tammy Bangs,
was a collaborative publication which brought together a collection of
wisdom and discussions from preemie parents and professionals. The Early
Edition is an informative and moving consolidation of the experiences
of parents of preemies packaged for distribution to your NICU, support
groups, friends and family.
After
the NICU
Tammy Bangs' After the NICU website provides advice
for when you finally bring home your baby, including feeding, visitors,
oxygen, sleep, and medication. The advice is a collection of experiences
from preemie-l parents who have "been there, done that." A nice
introduction to the homecoming preemie, along with a listing of references
and other preemie websites.
Childrens
Disabilities Information
A great resource for parents of preemies who might have special needs.
This comprehensive website on children's special needs, covers many of
the long term impacts related to prematurity. Sensory integration, cerebral
palsy, vision impairment, speech and language, attention deficit (ADHD,
autism and more.
Small
Wonders ~ A Preemie Place
Laura Williams' Small Wonders ~ A Preemie Place provides
an information on growth and feeding issues in premature babies. Her website
includes information on feeding disorders, behavioral aspects of eating,
and feeding tips, along with a terrific forum.
Preemie
Resource Page
Mary Searcy's Preemie Resource Page provides an exhaustive
list of publications, organizations, websites, and other resources for
parents of preemies. A great place to start on your quest for information
on prematurity.
Coping
with Premature Birth: An Emotional Journey
The experience of having a preemie (or multiple preemies) is overwhelming
and life transforming. Mara Tesler Stein, Psy.D, a Clinical Psychologist
and mother to premature twins, provides a number of articles for parents
on the emotional journey of prematurity. Coping with Premature Birth:
An Emotional Journey is an excellent resource for a warm and professional
overview of the influence of prematurity on the family.
PrematureInfant.com
Dianne Maroney, a NICU nurse and the co-author of "Your Premature
Baby and Child", provides an array of helpful articles and advice
for parents and nurses on parenting a premature child. If you have a premature
baby or preschooler, take a moment to visit this website - you will be
glad that you did.
PreemieParents.com
Amy Tracy, the co-author of "Your Premature Baby and Child,"
provides a reading room on PreemieParents for parents of children
born premature. Her informative articles include topics such as parenting
your preemie, your preemie's clues, mild developmental delays and retinopathy
of prematurity (ROP).
Preemies.Org
Bill and Monica Stavig's Preemies.Org was established
to encourage parents of premature infants to talk with other parents using
various Internet resources. Their online chat sessions give parents a
chance to interact together.
Emory
Pediatrics Developmental Continuity Program
A professional collection of articles for physicians, parents, and therapists
involved with the care and development of children born prematurely is
provided at this site by Dr. Sheena Carter and other members of the Emory
Developmental Continuity Program, of Emory University. A great resource
for those interested in long term issues of prematurity - from babies
to older children.
Tommy's
CyberNursery Preemie Web
The King's CyberNursery is one of the longest standing
preemie sites on the Web and features an extensive listing of preemie,
baby and parenting links, as well as interactive features. Read the guest
book comments, visit the photo gallery and check out this extensive set
of resources.
Kangaroo
Care
Krisanne provides inspiration for parents who wish to provide Kangaroo
Care of their premature babies in the NICU. This site's photographs,
parent quotes, article links, and booklet on this special handling technique
provide encouragement to parents around the world.
Preemie
Info
Terry Tremethick's active website Preemie Info is an moderated
interactive display where parent view and submit stories, poems, photos
and links to share with one another.
Preemie
Web Ring
Rosanne Smith's Preemie Ring is a collection of
premature infant web sites. Go around the ring and visit sites of preemie
parents all over the world.
Imagine
Rebecca Pittelko' Imagines page a collection of personal
anecdotes been posted on the preemie-L mailing list. This is a stirring
set of quotes documenting the emotional response to parenting and giving
birth to a baby born premature.
Premature
Baby Information
Neonatologist Dr. Doug Derleth's Premature Baby Information
page provides expert information on issues important issues for parents
of premature infants. His articles include such as Minimizing Pain in
the NICU, Retinopathy of Prematurity, RSV FAQ, and Extreme Prematurity.
Preemie-l
Photo Gallery
Melissa Armstrong's Preemie-l Photo Gallery provides a wonderful
collection of photographs of children of preemie-l members arranged by
gestational age. A great visual testimonial for children born premature.
Photo's and links to personal websites are provided. The "Guardian
Angels" page pays homage to the premature babies who did not survive.
Inkan's
Homepage
Ingrid Olsson Renfor's Inkan's Home Page provides information
and resources about PROM (Premature Rupture of Membranes), an illustrated
list of preemie stories by gestational age, and support services for Swedish
parents of preemies.
Association
Des Parents D'Enfants Prematures du Quebec (APEP)
An organization in Quebec, Canada, which provides support and information
for families of infants born before 37 weeks gestation, and health professionals.
Support list, brochures and website are provided in French.
Michael
T Hynan's Home Page
Michael Hynan conducts research on stress reactions in parents that
have had their premature (or full-term high-risk) infant hospitalized
in the NICU. His website provides text of talks on coping with high risk
birth and the NICU.
The
Coalition for Prematurity Awareness
Mary Searcy and Sandra Peters created this site for
the Coalition for Prematurity Awareness to organize the promotion
of awareness of the incidence of premature births in the United States,
the preventable causes, and possible consequences. A part of the Elaine
Sayers'
Alexis
Foundation
Elaine Sayers' Alexis Foundation provides articles from the prematurity
conference 1999 and other resources.
Miracle
Sam: VIP (Very Important Preemie)
Susan Warren's web page Miracle Sam: Very Important Preemie contains
the touching story of her son Sam, who was born with a number of premature
complications and immunodefciency. Her website includes guidance on "Learning
to Touch a Preemie," lactation, caring for a central line, and instructions
to make a custom cover for an isolette.
T-Bone's
Survival Tips for New Preemie Parents
Kerry Bone's website T-Bone's Survival Tips for New Preemie Parents
provides suggestions to help parents, family and friends cope with the
emotional side of the birth of a premature baby. Articles cover subjects
such as asking questions, taking care of yourself, emotions, breast feeding,
how your family and friends cope, holidays, disabilities and many more.
Amy's
HELLP Syndrome Page
Ami Logan's HELLP Syndrome homepage provides inforamtion and resources
on HELLP (Hemolysis, Elevated liver, Low platelet), pre-eclampsia, and
pregnancy induced hypertension. In addition, the HELLP website provides
HELLP syndrome birth stories, a
message board and the HELLP Syndrome WebRing.
Preemie
Mom's Page
In the Preemie Mom's Page Sandra Peters shares the life
changing experience of the premature births of her two children. Her
well written articles on parenting a child with cerebral palsy are compelling
and informative. Articles from her newsletter, Preemie
Parent Connection, cover topics such as assisting preemie dads and
granddads, surviving a medical crises, and supporting the siblings of
a special needs child, from a number of distinguished contributers.
Copyright Allison Martin
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